Anyone for a Beder Walk?

Nothing so unusual about a dog walk on a Sunday morning with some friends, only this walk happened to be very different indeed.

 A Beder Walk in fact, so named when a young man called Beder took his own life at just 18 years of age. Naturally, his family were completely devastated and during their long grieving process, it became apparent that they wanted to establish a charity in his name (Beder) to confront the mental health crisis that took his life, so that other families do not experience a similar fate and their unending pain.

We met Razzak Mirjan at one of Sam’s supper clubs in London. Razzak founded the charity and speaks passionately about his younger brother and the need to help others. We liked their goal and ambition albeit it's an overwhelming task and ever moving target given that mental illness is so hard to diagnose and treat. And that there appears to be something of a perfect storm of circumstances which are confronting young people.

Everyone has an opinion on what is the root cause for poor mental health. The internet and social media tops most lists and particularly that bullying now extends its reach from the school playground into the home which is supposed to be a safe haven. The smart phone has not been the great liberator it promised to be.

Classic bullying is physical. Being pushed around. But now in this internet age, bullying is much more likely to be loneliness, social exclusion and public humiliation. Experiencing such things can lead to dark and difficult places. It diminishes confidence and self-esteem and this compounds a downwards spiral.

 Hence the Beder Walk.

As simple as just a walk in the park. Nothing too rigorous. Only an hour or so, from an agreed starting place and which everyone is welcome to attend, including dogs but no phones. This inaugural Beder Walk took place last weekend when we invited a bunch of our friends and young people to meet in Richmond Park.

As Razzak gave a short welcoming speech about his younger brother, his charity and what he hoped to achieve with the Beder Walk, I was struck by the number of people present that I knew have first-hand experience of losing someone to suicide.

One of my oldest and closest friends who died in lockdown. A doctor friend of my mate, Jon. My nephews friend who died earlier this year. The boyfriend of the daughter of one of Nikki’s closest school friends…

Also present were young people who have suffered with various conditions such as eating disorders and acute anxiety.

And even though walking is good for us, we are not so naïve to think that a simple walk is going to be a cure for ailing mental health. But it can be a start and a pathway to an ultimate cure and a more successful and productive life.

A chance to meet people in person. To chat with people who might share similar fears and circumstances. To laugh with others. To pat a dog and find out its name and throw it a ball or a stick. Just to talk to someone in person and not on a screen…

Such Mental Health walks are not new. There is one in our area founded by a dad whose own suicide attempt failed – and so grateful was he, that he wanted to share his story to help others and conceived a walk for this purpose. He announced his walk – a time and place and he invited anyone to attend who might be struggling and might benefit from some company.

To begin with, each week, he waited alone because no one showed up. But he kept on attending just in case someone did arrive, in need of some time and a friendly ear.

Word spread and this ongoing walk now regularly attracts many people each week. Just attending is probably a breakthrough for some as an admission that they need support. And who knows the impact that these walks are having. Even saving lives with some men still their families because of them.

This is the ambition we have for the Beder Walk. That our Beder Walk will become a regular thing – monthly to begin with and propagated through our web site and media channels – something that young people will become aware of and attend if they feel the need.

And we hope that our Beder Walk might be replicated by other organisers elsewhere and all over the place to help young people who are lonely or marginalised and are needing help.

 

 

Taking stock...

Video by Raw Pixels

Undoubtedly, words are powerful and can even be mightier than the sword as the adage goes.

Thankyou is certainly a powerful word, albeit it is two words, ‘thank’ and ‘you’ and is a common literary mistake.

My Ted talk focussed on simple words but with powerful effects. Please, thank you, hello and goodbye. Plus, make eye contact and if you know someone’s name, then you should use it. These are good skills to acquire for young boys as they grow up into hopefully decent adults.

An even more powerful word than ‘thankyou’ is sorry. A word which is too absent from too many vocabularies, perhaps because we fear it makes us weak and vulnerable when it very often has the opposite effect. Contrition is glaringly absent from our political masters and our world is always poorer for it.

But I want to concentrate on gratitude for this blog and this brings me to our Brothers Trust event last Sunday – a screening of Spider-Man No Way Home.

Months in the planning. We had booked a salubrious London cinema. Tom had returned from the States because without him, it was just another trip to the cinema and not so exciting. Invitations had been dispatched to various charities and the young people in their care. Videographer and photographer with instant printing capabilities booked. Goodie bags booked, thanks to our supporter, M&S. A sweepstake was arranged to raise some funds. A chance for one family to win flights, a hotel, spending money, tickets to the screening and the chance to meet Tom…

And then, on a wet Sunday morning, everything came together. Kids and their carers streamed in. All 250 of them. All excited and some no doubt, a little anxious.

Children with an array of illnesses and conditions. Some whose ailments were glaringly apparent, and others more hidden, like poverty. We met some of the poorest kids of one of the world’s richest cities. Some children were so ill, they had come from hospital and where they must return to afterwards. Some children with terminal diagnoses, attending with their traumatised siblings and parents'.

The whole occasion is chastening and certainly pricks my personal woe bubble - for a moment or two, at least.

The remit of The Brothers Trust is to raise awareness of causes plus funds and to provide memorable experiences for children blighted by illness or life circumstances. Some of you will recall James Dunn, who finally succumbed to his EB in 2017. James took morphine all his life, but he explained that the only thing that fully took away his pain was distraction. To be excited about something allowed him to momentarily forget his pain…

Like visiting a plush cinema to watch a Spider-Man movie and then to meet its star.

Back to the Future is a wonderful film and one that had a big impact on me. It left me on such a high I think I floated out of the cinema. Sure, I wanted a De Lorean sports car but what I really wanted was to be Michael J. Fox. I was in awe of him, and I was 18 at the time so not such an impressible child.

And with this is mind, I tried to imagine the excitement of the children attending last Sunday. To watch the movie, for some kids it would have been their first trip to a movie theatre… and then to meet Tom afterwards and ask him questions, creating indelible memories, no doubt.

And to my point, you might be wondering…

My point about gratitude, and on this, you will be relieved that my thrust is not Tom or any of the Holland family being thanked.

To make this point, I refer to a sage observation by Harry, made after the event.

We were dwelling on the day in general, and particularly Tom’s Q n A after the movie. Given how Marty McFly had made me swoon, it must have been bamboozling to suddenly encounter the young actor who’d they just watched vanquishing the villains and saving the world. Some kids were too shy. Some couldn’t be understood and needed help. Others were exuberant and unabashed. And some were plain cheeky…

‘When are you going to propose to Zendaya?’ 

‘How much do you earn...?"

A packed cinema, with people from all over. Our sweepstake winners from LA. Kids who’d flown in from Florida via the Make a Wish foundation. A family from Belfast and from all over the UK and beyond. All travelling to see Spider-Man on screen and in person. All beguiled by Tom and beholden to his every word.

 And to Harry’s observation…

‘For Tom, to have this kind of impact on people. To have a full cinema packed to the rafters. For people to fly in. Get up at stupid-o-clock to arrive on time. To have all these people, so excited to meet you and have a photograph with you… that’s a real privilege.’

 This struck me as true and very wise.

 Via Tom’s popularity and reach, that we have been able to establish The Brothers Trust has been a privilege for us all. To see the effect that such experiences have on young people and to witness the impacts that our grants have is also a privilege. And only made possible by our supporters and Tom’s fans and so this privilege can be shared far and wide.

Which is why we don’t need to be thanked and sometimes we feel churlish when people expend considerable energies extolling our virtues.

It’s nice to be thanked, of course it is. Everyone wants to feel appreciated. Nikki and I have enjoyed reading the kind comments from attendees on various platforms and in various kind emails we have received.

But being thanked per se is unnecessary because TBT serves us as much as any of the people whom we are to support.

The same applies to any pride we feel for Tom and his achievements. Yes, we are proud of him, of how he speaks and how well he interacts with these children and makes them feel.

And to the point which is occasionally put to me…

 ‘…but he doesn’t have to do this.’

Yes, he does.

He needn’t do it, but he should because it makes him more whole, and being more complete is a life worth living and what we should all strive for.

This privilege that Tom enjoys is something I enjoy also in being able to write this blog and share it with my patrons.

And finally, as per usual, your comments to this blog are welcome – but I hope you'll realise that no thank yous are necessary to either Tom or Team Holland more generally.

Marci Fair - A Real Life Superhero!

 Charities spend considerable energy worrying about generating their vital income, so when Marci, the founder of Kares 4 Kids received an unsolicited email five years ago from Nikki Holland of The Brothers Trust (a charity based in London looking for charities to support) she thought it was a scam and almost did not respond. Marci is used to appealing for support - not fielding emails from Trusts looking to make awards.

Childhood Cancer Awareness Month

September is worldwide Childhood Cancer Awareness month, so it is timely to discuss and publicise the work of a charity that the Brothers Trust supports called Momentum Children’s Charity. Founded by a local hospital receptionist and some mums around a kitchen table to provide care and provision for gravely ill children and their families, Momentum is now present in 9 hospitals and their output is tangible and highly effective as you will see below in this short blog.

An Important Blog for Everyone.

Although it is very welcome that the stigma surrounding mental health appears to be reducing, it is apparent to everyone that mental health issues are rising fast, and particularly so amongst young people.

There will be many reasons to explain this rise (social media, cultural changes, family breakdown…) and while this debate rages, a charity called stem4 is busy confronting the issues that young people are contending with.

Storybook Dads

Sitting on the train, on his way home from school each day, my dad would always look up at Wormwood Scrubs, one of London’s most infamous prisons. Its high walls and foreboding front gates. He wondered about what went on inside and what the prisoners had done to end up in there. I suppose it served as an incentive for him to work hard at school?

RIP Oliver & God Bless

I only met Oliver Thomas on a few occasions. Three times perhaps over a period of about five years and yet he made such a lasting impression on me and I imagine everyone else he ever encountered. His dad, Mick is a TV director who I had worked with and known for many years. I was vaguely aware that his son, Oliver was not very well. He had a disease I had never heard of and having never met Oliver, it all rather passed me by.

 

That disease was EB, a most cruel and vicious disease and which finally took Oliver from his loving parents, Sarah and Mick and his sister Sian.  Oliver was 32, no age for an ordinary life but an extraordinary duration against the cruel odds of EB. Oliver survived much longer than his parents could have hoped for or the medics might have predicted. But his survival is bitter sweet because EB inflicts such enormous and very obvious pain and yet Mick never tired of explaining that Oliver never once complained about his lot. This is a remarkable sign of his strength and fortitude and also the love that he was enveloped in by his family.

 

It has been an altogether peculiar and often sad year. It began with lockdown and uncertainly and it is set to close in the same way. A mid-term reprieve not enough for many people to salvage what can be considered a good year. For Tom, his year ends strongly with the release of No Way Home and its reception from his legions of fans is a good reminder to Nikki and I of how fortunate we are. But during 2021 Tom was also able to complete another film and one that featured Oliver Thomas and his brave story. EBRP is an American charity with bold ambitions to cure EB by the end of this decade and why Tom was happy to front their online telethon which raised more than $2m for the cause. Sufferers like James Dunn, Freddie Fincham and now Oliver Thomas are young men who we have encountered through the Brothers Trust and witnessed first-hand their determination to help future children blighted with EB. Just like James and Freddie, Oliver lived his life as big as was possible and he did not die in vain. The clever people in white coats are inspired to defeat EB by people like Oliver.

 

For the EBRP film, Harry and I visited the Thomas home, not far from where we live. Sarah’s love and pride for Oliver was palpable and rightly so. His death is a great loss to the family even though they knew to expect it with his terminal diagnosis with a skin cancer. Oliver loved his football and he loved his life. It was an honour to have him along to our screening days with Tom and to see him at celebrity golf days that his dad had organised and how I first encountered EB.

 

He will be sorely missed by many but at least now and finally, his unrelenting pain is over.

 

God Bless Oliver Thomas.

The Launch of The Brothers Trust Hoodie to shine a light and support Children’s Cancer Awareness Month. #CCAM

There are lots of things to love about our hoodies and not just that they are warm and cosy.

We love that all the proceeds are going to Momentum Children’s Charity – a charity that helps children suffering with life-limiting conditions and supports their families in many crucial ways but also we love that our hoodies are Made in England.

You're a Star

Those emails that we all receive about another cause and yet another fundraising effort!

Well, this is one such message and we make apologies because it is really rather special and heartfelt…

Introducing Star Keeble, the 12 year big sister to Ray Keeble, who was born last July with EB, a disease that the Brothers Trust wants the world to know about so that the necessary funds can be raised so that a cure can be found.